The Patient Voice in Rare Disease Research: Listening to patients and families is more important than ever
In rare disease research, patients and families are taking a seat at the table, providing real-life perspectives that are helping to shape the development of new therapies. Sponsors, regulatory agencies, payers and health care providers alike are seeing the value of this increasing patient involvement.
Join IQVIA women leaders Ali Smyth, PhD, Strategy Director, Pediatric and Rare Disease Center of Excellence and Sarah Kromrey, Therapeutic Strategy Director, Internal Medicine, IQVIA Biotech on this roundtable to discuss the importance of the patient voice in rare disease development - now and in the future.
Learn how rare disease patients and families have been impacted by the pandemic, and why listening to their voice now is more important than ever. Register now!
3 Key Takeaways
- Recognize the value of including the rare disease patient’s perspective in clinical research
- Understand the impact of COVID-19 pandemic on rare disease patients and families
- Discover new ways to make clinical trials more patient centric
